People who have the disease cannot tolerate gluten, a protein in wheat, rye, and barley.
The disease can lead to terminal illnesses if untreated.
There is no cure for it and there is only one known treatment for it.
It is effective in eliminating the symptoms of the disease.
The only known treatment is a change of diet to a gluten free diet.
This diet will need to be followed for the rest of the sufferer's life.
Because the treatment is a lifetime matter, a support team is needed to help the sufferer to change diet and maintain that change.
It is difficult to change a habit.
Eating patterns are a habit.
To change eating habits that have been developed over time, and in some cases a long time, requires the help of a support team comprised of health professionals, family and friends, and contact with other celiac sufferers.
Celiac support and education The first step in the treatment of the is education.
Some elements of a support team provide education.
Other elements require education.
Health professionals and other celiacs provide education.
The sufferer and the sufferers family and friends require education.
Education involves the following:
- understanding the disease
- understanding the symptoms
- understanding what triggers the symptoms
- understanding the treatment of the disease
- understanding how to treat(regard or think about) a sufferer
It is important to know that there is no such thing as a typical sufferer.
While all sufferers are alike in that they have a reaction to gluten, each is very different in ways which only the individual and his/her physician will know.
Symptoms of the disease vary from sufferer to sufferer.
The physician will help the sufferer to understand the disease, its symptoms, and its treatment.
The dietitian or nutritionist will know all about the foods and products that contain gluten.
As gluten triggers the disease, the transfer of this knowledge from the dietitian or nutritionist to the sufferer is vital.
The sufferer will learn:
- what foods to eat
- what foods to avoid
- what foods can be substitutes for glutenous foods
- how to read labels on foods to detect gluten
In order to do this, they must understand the disease, its symptoms, what triggers them, and how to prevent the appearance of the symptoms.
They must also understand that its treatment is a lifetime matter.
But most of all, they must come to view the disease as as something similar to an allergy - an allergy to gluten.
Just as someone allergic to cats will have an allergic reaction when in contact with a cat and just as a hay fever sufferer will have a reaction when the pollen count is high, a celiac sufferer will have a reaction to eating food containing gluten.
People with allergies lead normal healthy lives when they are not experiencing a reaction to their allergy.
So too with a celiac.
When the their diet remains gluten free, they live a normal healthy life.
Support from other sufferers of the disease Every state in the US has a celiac support group.
These groups are composed of sufferers, family members of sufferers and others who have been touched by the disease in some way.
It is important for a sufferer to become part of, or be in touch with, a local support group.
It will provide:
- an understanding of how to live with the disease
- the location of local stores that stock a large range of gluten free food
- the local restaurants that gluten free menus and also restaurants that have an array safe foods
- gluten free recipes and sources of gluten free recipes